Little Bleeders were recently featured in a special supplement of the Guardian. The Modern Family Newspaper, delivered with the Guardian, is aimed at families and is full of tips and inspiration about helping children to get the best start in life.
The article discusses the need for improved access to services that can help young people with haemophilia lead healthy, active lives. Access to the right care such as physiotherapy, and mental health support reduces the challenges that young people with bleeding disorders face and opens the door to activities that were once thought to be out of reach.
“The range of treatments has improved massively and healthcare professionals work tirelessly to provide exceptional care to people with bleeding disorders here in the UK,” said Alex Dowsett, Chairman of Little Bleeders. Unfortunately, as Alex says, there are inequalities across the UK when it comes to access to these treatments and services.
“Alex and others are now showing us what’s possible [for people with haemophilia]. We need to focus on inclusion, not exclusion,” said Dr Dan Hart, consultant haematologist at the Royal London Hospital Haemophilia Centre and Little Bleeders Lead Clinician. As a result, Little Bleeders is working hard to ensure that families of young people with haemophilia are receiving the right support and are equipped with the right resources and information.
Part of this work has included participating in a major report called Haemophilia 180, which was presented to parliament in late 2018. The report calls for a review of the current treatment goals for people with haemophilia and a move towards a more positive and empowering future.
Little Bleeders will be continuing their mission of spreading awareness of the need for young people with Haemophilia to have the support and feel empowered to ‘move more and be more’ living an active life. Watch this space.
See the article here.